RealTalk MS
Jon Strum
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
Categories: Health
Listen to the last episode:
There are some people who, once you meet them, it's impossible to forget them. They seem to leave an indelible impression. Lydia Emily is one of those people. Whether it's through her art that occasionally escapes the canvas to be expressed as massive urban murals proclaiming End MS, or through her outspoken MS advocacy. Lydia Emily is a force. Now, along with co-author Lenlee Keep, Lydia Emily has channeled that energy into a book entitled, The Art of Hope: The Life and Art of Lydia Emily.
Lydia Emily and her co-author, Lenlee Keep, join me this week to talk about the process of writing the book and some of the issues affecting people with MS that Lydia Emily is passionate about.
We'll also tell you about study results that provide an answer to how nerve cells die in MS.
We'll share results from a study that shows MS progression may not be directly connected to the number of lesions someone may have.
And we'll tell you about research that provides evidence for continuing your MS disease-modifying therapy, no matter your age.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: The Art of Hope :22
A study uses a novel mouse model to explain how nerve cells die in MS 2:17
Study results show that MS progression may have less to do with the number of lesions and more to do with what's happening inside those lesions 5:23
Study results provide evidence for continuing your DMT, even as you age 9:15
Artist Lydia Emily and co-author Lenlee Keep discuss The Art of Hope: The Life and Art of Lydia Emily 14:17
Share this episode 34:50
Have you downloaded the free RealTalk MS app? 35:11
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Remyelination Protects Neurons from DLK-Mediated Neurodegeneration https://www.nature.com/articles/s41467-024-53429-5
STUDY: Advanced MRI Measures of Myelin and Axon Volume Identify Repair in Multiple Sclerosis https://onlinelibrary.wiley.com/doi/10.1002/ana.27102
STUDY: Impact of Discontinuing Disease-Modifying Therapies On Healthcare Utilization Among Midlife Patients with Multiple Sclerosis in the United States https://www.jmcp.org/doi/10.18553/jmcp.2024.30.11.1248
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RealTalk MS Episode 377 Guests: Lydia Emily and Lenlee Keep
Previous episodes
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466 - Episode 377: The Art of Hope with Lydia Emily Mon, 18 Nov 2024 - 0h
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465 - Special Episode: Pregnancy and MS with Dr. Riley Bove Thu, 14 Nov 2024 - 0h
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464 - Episode 376: Adding Dance, Music, and Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux Mon, 11 Nov 2024 - 0h
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463 - Episode 375: Managing Teenage MS with Dr. Ann Yeh Mon, 04 Nov 2024 - 0h
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462 - Episode 374: Grieving When You're Living With MS with Dr. Holly Hendin Mon, 28 Oct 2024 - 0h
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461 - Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo Mon, 21 Oct 2024 - 0h
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460 - Episode 372: Medicare Changes That Will Affect You in 2025 with Sarah Anderson Mon, 14 Oct 2024 - 0h
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459 - Episode 371: A Difference-Making Mobility Device with Dee Ecklund and BE Alink Mon, 07 Oct 2024 - 0h
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458 - ECTRIMS Extra: Results from the Tolebrutinib Phase 3 Clinical Trial for Relapsing MS with Dr. Jiwon Oh Thu, 03 Oct 2024 - 0h
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457 - Episode 370: Understanding the Updated Pathways to Cures Research Roadmap with Dr. Bruce Bebo and Shawna Golden Mon, 30 Sep 2024 - 0h
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456 - ECTRIMS Extra: Revisions to the Way MS is Diagnosed with Dr. Peter Calabresi Sat, 28 Sep 2024 - 0h
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455 - ECTRIMS Extra: Rachel Horne and Professor Kerstin Helwig Wed, 25 Sep 2024 - 0h
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454 - Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo Mon, 23 Sep 2024 - 0h
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453 - ECTRIMS EXTRA: New Course Descriptors for MS with Dr. Fred Lublin Sat, 21 Sep 2024 - 0h
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452 - Episode 368: Living a More Purposeful Life with MS with Dr. Evan Smith Mon, 16 Sep 2024 - 0h
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451 - Episode 367: Budgeting for Living with MS with Bruce McClary Mon, 09 Sep 2024 - 0h
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450 - Episode 366: Medicare and MS -- Getting Your Ducks In a Row with Laquel Thomas Mon, 02 Sep 2024 - 0h
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449 - Episode 365: It's the Episode Where I Get Interviewed with Jon Strum Mon, 26 Aug 2024 - 0h
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448 - Episode 364: Understanding the Signs and Symptoms of MS with Dr. Leorah Freeman Mon, 19 Aug 2024 - 0h
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447 - Episode 363: Safe Driving When You're Living with MS with Jenny Nordine, OTL, CDRS Mon, 12 Aug 2024 - 0h
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446 - Episode 362: The Role of Integrative Medicine in Treating MS with Dr. Lynne Shinto Mon, 05 Aug 2024 - 0h
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445 - Episode 361: Meet the new President and CEO of the National MS Society with Dr. Tim Coetzee Mon, 29 Jul 2024 - 0h
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444 - Episode 360: How Digital Technology Is Changing the Diagnosis and Treatment of MS with Dr. Riley Bove Mon, 22 Jul 2024 - 0h
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443 - Episode 359: The Unraveling with Dr. Nara Michaelson Mon, 15 Jul 2024 - 0h
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442 - Episode 358: VISIBL-MS with Dr. Jaime Imitola Mon, 08 Jul 2024 - 0h
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441 - Episode 357: Living Your Best Life When You're Living with MS with Dr. Lisa Doggett Mon, 01 Jul 2024 - 0h
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440 - Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo Mon, 24 Jun 2024 - 0h
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439 - Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox Mon, 17 Jun 2024 - 0h
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438 - Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2 Mon, 10 Jun 2024 - 0h
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437 - Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger Mon, 03 Jun 2024 - 0h
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436 - Episode 352: World MS Day with Rachel Horne Mon, 27 May 2024 - 0h
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435 - Episode 351: Managing Stress When You're Living with MS with Dr. Grace Tworek Mon, 20 May 2024 - 0h
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434 - Episode 350: Choosing Your MS Disease-Modifying Therapy with Dr. Barbara Giesser Mon, 13 May 2024 - 0h
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433 - Episode 349: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 2) Mon, 06 May 2024 - 0h
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432 - Episode 348: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 1) Mon, 29 Apr 2024 - 0h
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431 - Episode 347: Vitamin D and MS with Dr. Ellen Mowry Mon, 22 Apr 2024 - 0h
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430 - Episode 346: Why Members of Minority Communities May Face A More Severe MS Disease Course with Dr. Annette Langer-Gould Mon, 15 Apr 2024 - 0h
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429 - Episode 345: A Deep Dive into Women's Health and MS with Dr. Rhonda Voskuhl and Dr. Anna Shah Mon, 08 Apr 2024 - 0h
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428 - Episode 344: Big Data Leads to Big Breakthroughs in MS with Professor Sergio Baranzini Mon, 01 Apr 2024 - 0h
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427 - Episode 343: Progressive MS Day with Kevin Reid Mon, 25 Mar 2024 - 0h
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426 - Episode 342: Behind the Scenes of an MS Research Study with Chiquita Shepard-Knight and Earl Sneed Mon, 18 Mar 2024 - 0h
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425 - Episode 341: How MS Can Impact Vision with Dr. Shiv Saidha Mon, 11 Mar 2024 - 0h
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424 - Episode 340: This Is Not Your Father's MS Rehabilitation with Dr. Deborah Backus and Dr. Brad Willingham Mon, 04 Mar 2024 - 0h
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423 - Episode 339: Understanding Progression Independent of Relapse Activity with Professor Alan Thompson Mon, 26 Feb 2024 - 0h
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422 - Episode 338: Inside MS Advocacy and This Year's Public Policy Conference with Steffany Stern Mon, 19 Feb 2024 - 0h
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421 - Episode 337: Aging With MS with Dr. Aaron Boster Mon, 12 Feb 2024 - 0h
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420 - Episode 336: Applying for Social Security Disability Insurance with Jamie Hall, Esq. Mon, 05 Feb 2024 - 0h
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419 - Bonus Episode: MS21: Are We Meeting the Needs of Individuals at the Time of Their MS Diagnosis with Prof. Alice Laroni and Rachel Horne Thu, 01 Feb 2024 - 0h
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418 - Episode 335: Know Your Employment Rights If You're Living With MS with Christina Forster Mon, 29 Jan 2024 - 0h
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417 - Episode 334: Managing Health Insurance When You're Living With MS with Carla Turechek Mon, 22 Jan 2024 - 0h